Guidance and Referrals Support Support Groups Interactive Group Meetings Care-Ring Voice Network Equipment Program Regional Programs Programs for Children and Teenagers
The ALS Society of Quebec welcomes anyone diagnosed with amyotrophic lateral sclerosis.
The ALSSQ provides personalized support to people living with ALS and their families throughout the course of the illness. Of course, this kind of support varies greatly from one person to the next since it is tailored to the specific needs of the individual.
From September to May, the ALSSQ organizes evening information and discussion meetings for people living with ALS, their family members, and health-care professionals. The themes are selected in response to the needs and interests expressed by members. After the presentations, participants have an opportunity to ask questions and take part in discussions.
Support groups meet from 7:00 p.m. to 9:00 p.m. at the ALS Society of Quebec offices. Click here for the schedule and themes of upcoming meetings.
Don't hesitate to get in touch with us if you have questions about support groups or the topics suggested for discussion.
Interactive group meetings, held from September to May, are both for people living with ALS and their caregivers. These informal meetings provide opportunities to talk to people dealing with the same issues. To facilitate discussion, Interactive group meetings are divided into two groups: one for people living with ALS and another for caregivers.
Interactive group meetings are held from 1:30 p.m. to 3:30 p.m. at the ALS Society of Quebec offices. Click here for the schedule of upcoming meetings.
Care-Ring Voice Network
The ALS Society is proud to offer a new service called the Care-Ring Voice Network program.
The Care-Ring Voice Network provides family caregivers and people living with ALS the opportunity to take part in tele-workshops with other caregivers in similar situations. Without leaving work, or in the comfort of their own homes, the program aims to inform, educate, and support caregivers.
Making It Happen
The Care-Ring Voice Network is a confidential, bilingual, and free tele-workshop service providing primary caregivers with support and information.
Step 1 :
The caregiver or the person living with ALS registers on the Care-Ring Voice Network info-line.
Step 2 :
When the time comes for the tele-workshop, the primary caregiver calls the number provided by the Care-Ring Voice Network staff and is automatically connected to the ALS Society tele-workshop. The caregiver can take part from anywhere a telephone is available.
This approach allows caregivers the unique opportunity to discuss relevant topics with other caregivers who are dealing with the same situations.
To see what the next themes discussed will be, check out our Calendar of Events.
You can find out more about the program at
http://www.careringvoice.com
The program has two components:
The loan policy is subject to three conditions:
- Requests must comply with program objectives.
- Patient eligibility must be established.
- Requests must be submitted to the ALS Society of Quebec by an occupational therapist caring for the patient.
Grants from the ALS Society of Canada and the Fondation André-Delambre have enabled the ALS Society of Quebec to reach out to regional communities to meet with people living with ALS and their caregivers, become familiar with their needs, offer them services, and increase awareness of the disease among the public and practitioners.
These meetings in the community can include a presentation on a specific ALS-related issue, discussion forums with specialists, or testimonies by individuals living with the disease.
Click here for the schedule of upcoming regional visits.
Programs for Children and Teenagers
als411 – ALl for KidS
The ALS Society of Canada has created als411, a support and information program designed to help children who have a parent living with ALS.
You can find out more about the program and its resources by clicking here.
